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H.Res.1060

Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".

Introduced·2/11/26
Introduced
Introduced in House · February 12, 2026

February 11, 2026

Mr. Tonko (for himself, Mr. Bilirakis, Ms. Matsui, Mr. Norman, Mrs. Trahan, Mr. Auchincloss, Mr. McGarvey, Ms. Davids of Kansas, Mr. Wilson of South Carolina, Mrs. Biggs of South Carolina, and Mr. Latimer) submitted the following resolution; which was referred to the Committee on Energy and Commerce

RESOLUTION

Expressing support for the designation of April 5, 2026, as “Barth Syndrome Awareness Day”.

  1. (1) supports the designation of “Barth Syndrome Awareness Day”; and
  2. (2) recognizes the importance of, with respect to Barth syndrome,—
    1. (A) improving awareness;
    2. (B) encouraging accurate and early diagnosis;
    3. (C) advancing research;
    4. (D) developing new treatments, diagnostics, and cures; and
    5. (E) identifying regulatory pathways for drug development of ultrarare diseases like Barth syndrome.