Supports designating April 5, 2026, as "Barth Syndrome Awareness Day" to raise awareness and support for Barth syndrome.
This bill expresses support for designating April 5, 2026, as "Barth Syndrome Awareness Day" to highlight the need for awareness, early diagnosis, research, and treatment development for Barth syndrome, a rare genetic disorder primarily affecting males. The resolution recognizes the importance of advancing treatments and cures, and the critical role of the Barth Syndrome Foundation in raising awareness and support. The day aims to provide hope and information for patients, caregivers, and families affected by this life-threatening condition.
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