Establishes a rare disease advisory council to identify best practices, raise awareness, evaluate barriers, and make recommendations to the.

The bill establishes a rare disease advisory council within the Department of Health to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and make recommendations to the legislature and the governor. The council will include members with expertise in rare diseases, representatives from the health insurance industry, and individuals who have a rare disease and caregivers. The council will prioritize patient and caregiver voices and ensure no single disease state is disproportionately represented.

Establishes a rare disease advisory council to identify best practices, raise awareness, evaluate barriers, and make recommendations to the.

The bill establishes a rare disease advisory council within the Department of Health to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and make recommendations to the legislature and the governor. The council will include members with expertise in rare diseases, representatives from the health insurance industry, and individuals who have a rare disease and caregivers. The council will prioritize patient and caregiver voices and ensure no single disease state is disproportionately represented.