Memorializes Governor Kathy Hochul to proclaim October 25-31, 2026, as Epidermolysis Bullosa Awareness Week in New York.

This bill memorializes Governor Kathy Hochul to proclaim October 25-31, 2026, as Epidermolysis Bullosa Awareness Week in New York, also known as Butterfly Children Awareness Week. The bill highlights the challenges faced by individuals with Epidermolysis Bullosa (EB), a rare genetic disorder causing fragile skin and recurrent blister formation. It emphasizes the need for greater public awareness and understanding of EB, which affects approximately one in every 20,000 live births.

Memorializes Governor Kathy Hochul to proclaim October 25-31, 2026, as Epidermolysis Bullosa Awareness Week in New York.

This bill memorializes Governor Kathy Hochul to proclaim October 25-31, 2026, as Epidermolysis Bullosa Awareness Week in New York, also known as Butterfly Children Awareness Week. The bill highlights the challenges faced by individuals with Epidermolysis Bullosa (EB), a rare genetic disorder causing fragile skin and recurrent blister formation. It emphasizes the need for greater public awareness and understanding of EB, which affects approximately one in every 20,000 live births.