New York S06413 establishes a registry for amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) to collect incidence and prevalence.

New York S06413 amends the public health law to establish a registry for the collection of information on the incidence and prevalence of ALS and MND in the state. It mandates that healthcare providers report cases of ALS and MND to the Department of Health. Patients diagnosed with ALS or MND must be informed about the data collection and given the option to opt out. The registry will maintain patient data confidentially, with access limited to authorized personnel.

New York S06413 establishes a registry for amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) to collect incidence and prevalence.

New York S06413 amends the public health law to establish a registry for the collection of information on the incidence and prevalence of ALS and MND in the state. It mandates that healthcare providers report cases of ALS and MND to the Department of Health. Patients diagnosed with ALS or MND must be informed about the data collection and given the option to opt out. The registry will maintain patient data confidentially, with access limited to authorized personnel.