Memorializes Governor Kathy Hochul to proclaim October 25-31, 2025, as Epidermolysis Bullosa Awareness Week in New York.

This bill memorializes Governor Kathy Hochul to proclaim October 25-31, 2025, as Epidermolysis Bullosa Awareness Week in New York, also known as Butterfly Children Awareness Week. Epidermolysis Bullosa (EB) is a rare genetic disorder causing fragile skin and recurrent blister formation. There are five types of EB, with varying severity, and it affects approximately one in 20,000 live births. The bill highlights the need for greater public awareness and support for EB patients and their families.

Memorializes Governor Kathy Hochul to proclaim October 25-31, 2025, as Epidermolysis Bullosa Awareness Week in New York.

This bill memorializes Governor Kathy Hochul to proclaim October 25-31, 2025, as Epidermolysis Bullosa Awareness Week in New York, also known as Butterfly Children Awareness Week. Epidermolysis Bullosa (EB) is a rare genetic disorder causing fragile skin and recurrent blister formation. There are five types of EB, with varying severity, and it affects approximately one in 20,000 live births. The bill highlights the need for greater public awareness and support for EB patients and their families.