Memorializes Governor Kathy Hochul to proclaim February 28, 2025, as Rare Disease Day in New York.
The bill memorializes Governor Kathy Hochul to proclaim February 28, 2025, as Rare Disease Day in New York, in conjunction with National Rare Disease Day. It highlights the importance of raising awareness about rare diseases, which often lack cures or specific treatments and are frequently undiagnosed for many years. The bill notes the establishment of the New York State Rare Disease Alliance and the Albany Medical Center's Rare Disease Forum, and mentions ongoing research and development of treatments for rare diseases.
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