Memorializes Governor Kathy Hochul to proclaim March 2025 as Alport Syndrome Awareness Month in New York.

The bill memorializes Governor Kathy Hochul to proclaim March 2025 as Alport Syndrome Awareness Month in New York. Alport Syndrome is a rare genetic disorder characterized by progressive kidney disease and abnormalities of the inner ear and the eye. The bill highlights the importance of raising awareness about the disease, which affects fewer than 200,000 people in the United States. It also notes that there are currently no FDA-approved treatments to delay or stop renal function decline due to Alport Syndrome.

Memorializes Governor Kathy Hochul to proclaim March 2025 as Alport Syndrome Awareness Month in New York.

The bill memorializes Governor Kathy Hochul to proclaim March 2025 as Alport Syndrome Awareness Month in New York. Alport Syndrome is a rare genetic disorder characterized by progressive kidney disease and abnormalities of the inner ear and the eye. The bill highlights the importance of raising awareness about the disease, which affects fewer than 200,000 people in the United States. It also notes that there are currently no FDA-approved treatments to delay or stop renal function decline due to Alport Syndrome.