Memorializes Governor Kathy Hochul to proclaim February 28, 2025, as Rare Disease Day in New York.

This resolution memorializes Governor Kathy Hochul to proclaim February 28, 2025, as Rare Disease Day in New York. It highlights the importance of raising awareness and improving access to care for those affected by rare diseases. The resolution notes that there are nearly 10,000 rare diseases, with over 95% lacking FDA-approved treatments. It emphasizes the need for early detection and research to minimize the severity of these diseases. The resolution also mentions the establishment of a Rare Disease Advisory Work Group in 2020 to evaluate barriers to treatment and improve awareness.

Memorializes Governor Kathy Hochul to proclaim February 28, 2025, as Rare Disease Day in New York.

This resolution memorializes Governor Kathy Hochul to proclaim February 28, 2025, as Rare Disease Day in New York. It highlights the importance of raising awareness and improving access to care for those affected by rare diseases. The resolution notes that there are nearly 10,000 rare diseases, with over 95% lacking FDA-approved treatments. It emphasizes the need for early detection and research to minimize the severity of these diseases. The resolution also mentions the establishment of a Rare Disease Advisory Work Group in 2020 to evaluate barriers to treatment and improve awareness.