New York A05873 mandates that individuals diagnosed with sickle cell disease and their parents receive educational materials, establishes a registry.
New York A05873 amends the public health law to ensure that individuals diagnosed with sickle cell disease and their parents are informed of the diagnosis and provided with educational materials. The bill establishes a registry for persons with sickle cell disease, which includes records of individuals diagnosed with the disease and educational materials for the public and healthcare providers. Additionally, the Department of Health is required to issue an annual report on sickle cell disease.
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- Overview
- Core Provisions
- Implementation
- Impact
- Legal Framework
- Critical Issues
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