Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to.

The bill establishes the rare disease advisory council within the New York State Department of Health. The council's primary functions include identifying best practices to improve awareness and referral of rare diseases, evaluating barriers to access to care, and making recommendations to the legislature and the governor. The council will also consult with experts, provide testimony on pending legislation, and advise the Medicaid drug utilization review board.

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to.

The bill establishes the rare disease advisory council within the New York State Department of Health. The council's primary functions include identifying best practices to improve awareness and referral of rare diseases, evaluating barriers to access to care, and making recommendations to the legislature and the governor. The council will also consult with experts, provide testimony on pending legislation, and advise the Medicaid drug utilization review board.