Resolution to designate February 28, 2026, as "Rare Disease Day" to raise awareness and support research.
The resolution designates February 28, 2026, as "Rare Disease Day" to recognize the importance of improving awareness, encouraging accurate and early diagnosis, and supporting research efforts for rare diseases. It highlights the challenges faced by individuals with rare diseases, including difficulty in obtaining accurate diagnoses and accessing treatments. The resolution also notes the significant advancements made in rare disease research and treatment, particularly since the enactment of the Orphan Drug Act in 1983.
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- Overview
- Core Provisions
- Implementation
- Impact
- Legal Framework
- Critical Issues
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