Designates November 7 as Shwachman Diamond Syndrome Awareness Day to raise awareness of this rare genetic disorder.
This bill designates November 7 of each year as Shwachman Diamond Syndrome Awareness Day. Shwachman Diamond Syndrome (SDS) is a rare genetic disorder affecting bone marrow, pancreas, and skeleton. Symptoms include bone marrow dysfunction, liver issues, dental problems, developmental delays, and skeletal abnormalities. With modern treatment, many children with SDS lead normal lives but require ongoing management. The resolution aims to increase awareness, support affected individuals, and promote research into effective treatments.
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