HB05128

Connecticut HB05128 establishes rights and protections for consumers of direct-to-consumer genetic testing.

Connecticut HB05128 defines a consumer's property rights over their genetic data and biological samples. It mandates that consumers must give express consent before their genetic data can be collected, used, or disclosed. The bill prohibits companies from disclosing genetic data to third parties without consent, except for research purposes. It also requires companies to inform consumers about their data policies and procedures before accepting any biological samples or payments. The act takes effect on October 1, 2026.