Establishes an advisory council on rare diseases to advise the secretary of health.
The bill creates an advisory council on rare diseases to provide advice on research, diagnosis, treatment, and education related to rare diseases. The council will study the incidence and prevalence of rare diseases, access to treatment, and recommend strategies for education and public awareness. Members include clinicians, researchers, patient representatives, and industry experts. The council will submit reports to the governor and legislature every two years.
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