Establishes the Rare Disease Advisory Council to guide Vermont on rare disease needs.

The bill creates the Rare Disease Advisory Council within the Vermont Department of Health. The Council will provide guidance and recommendations to the public, General Assembly, and other government agencies regarding the needs of individuals with rare diseases in Vermont. The Council will conduct public hearings, consult with experts, and develop policy recommendations to improve patient access to services, diagnostic services, and treatment. It will also publish resources on its website and submit an annual report to the General Assembly.

Establishes the Rare Disease Advisory Council to guide Vermont on rare disease needs.

The bill creates the Rare Disease Advisory Council within the Vermont Department of Health. The Council will provide guidance and recommendations to the public, General Assembly, and other government agencies regarding the needs of individuals with rare diseases in Vermont. The Council will conduct public hearings, consult with experts, and develop policy recommendations to improve patient access to services, diagnostic services, and treatment. It will also publish resources on its website and submit an annual report to the General Assembly.