H5509

Sam Stockton and Batten Disease Awareness Day

Complete·4/14/26
Introduced Text

Recognizes Sam Stockton's battle with Batten disease and declares June 9, 2026, as Batten Disease Awareness Day in South Carolina.

This resolution recognizes Sam Stockton, a two-year-old with Batten disease, and his family's struggle with the condition. It declares June 9, 2026, as Batten Disease Awareness Day in South Carolina to raise awareness about this rare and devastating disease. Batten disease, a form of Neuronal Ceroid Lipofuscinosis, is caused by genetic mutations that prevent the body's cells from properly disposing of waste in the brain, leading to progressive damage to the brain and nervous system.

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Democratic CaucusRepublican Caucus

History

Apr 14

House

Introduced and adopted