Rhode Island H7639 mandates direct-to-consumer genetic testing companies to inform consumers about their genetic data policies and obtain express.
Rhode Island H7639, known as the Genetic Information Privacy Act, requires direct-to-consumer genetic testing companies to provide consumers with detailed information about the company's policies and procedures for the collection, use, maintenance, and disclosure of genetic data. Companies must also obtain express consent from consumers for the collection, use, and disclosure of their genetic data. This includes separate consent for each specific use of genetic data.
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