Rhode Island S2203 mandates genetic testing companies to disclose policies on genetic data use and obtain consumer consent.
Rhode Island S2203, known as the Genetic Information Privacy Act, requires direct-to-consumer genetic testing companies to inform consumers about their data policies and obtain express consent for data collection, use, and disclosure. The act defines genetic data and biological samples, and prohibits companies from sharing this information with entities involved in insurance or employment decisions. It also mandates companies to provide clear privacy notices and allows consumers to revoke consent and request data deletion. Violations of the act result in civil penalties.
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- Core Provisions
- Implementation
- Impact
- Legal Framework
- Critical Issues
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