Pennsylvania SR181 designates the week of October 25 through 31, 2025, as "Epidermolysis Bullosa Awareness Week" to raise awareness for the disorder.
Pennsylvania SR181 designates the week of October 25 through 31, 2025, as "Epidermolysis Bullosa Awareness Week" in Pennsylvania. Epidermolysis Bullosa (EB) is a rare, genetic, connective tissue disorder characterized by fragile skin and recurrent blister formation. The resolution highlights the need for greater public awareness and support for patients and their families. EB affects approximately 200 children annually in Pennsylvania, with severe forms leading to disfigurement, disability, and early death. The resolution aims to increase understanding and support for those affected by EB.
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