SR127

Designates June 23, 2025, as "Dravet Syndrome Awareness Day" in Pennsylvania to honor those affected and support advocacy, education, and research.

Pennsylvania SR127 designates June 23, 2025, as "Dravet Syndrome Awareness Day" to honor those impacted by this rare and catastrophic form of epilepsy. The resolution recognizes the profound impact of Dravet syndrome, which affects approximately 1 in 15,700 individuals, causing prolonged seizures, developmental delays, and a high risk of sudden unexplained death. The bill urges residents to learn more about the condition and support affected families, emphasizing the need for increased public awareness and continued research to improve outcomes and find a cure.