Pennsylvania HB1530 regulates direct-to-consumer genetic testing companies, prohibiting unauthorized disclosure of genetic data and imposing civil.
Pennsylvania HB1530, known as the Genetic Information Privacy Act, mandates duties for direct-to-consumer genetic testing companies to protect consumer genetic data. Companies must maintain genetic data in a deidentified form, obtain express consent for data use, and provide a privacy notice. Companies are prohibited from disclosing genetic data without written consent, except under specific conditions such as legal process, research, or identifying a deceased individual.
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