Pennsylvania HB1179 establishes privacy, transparency, and compensation requirements for genetic material testing entities.

Pennsylvania HB1179, known as the Genetic Materials Privacy and Compensation Act, mandates that genetic material testing entities establish comprehensive privacy programs. These programs must address privacy risks, protect genetic material confidentiality, and implement employee training and product design controls. The bill prohibits entities from misrepresenting data collection and use, requires affirmative express consent for genetic material collection, and mandates destruction of genetic material upon individual request.

Pennsylvania HB1179 establishes privacy, transparency, and compensation requirements for genetic material testing entities.

Pennsylvania HB1179, known as the Genetic Materials Privacy and Compensation Act, mandates that genetic material testing entities establish comprehensive privacy programs. These programs must address privacy risks, protect genetic material confidentiality, and implement employee training and product design controls. The bill prohibits entities from misrepresenting data collection and use, requires affirmative express consent for genetic material collection, and mandates destruction of genetic material upon individual request.