SB207

Establishes the Oklahoma Rare Disease Advisory Council to address rare disease needs and modifies newborn screening requirements.

The bill establishes the Oklahoma Rare Disease Advisory Council within the State Department of Health. The Council will convene public hearings, make inquiries, and solicit comments to survey the needs of rare disease patients, caregivers, and providers. It will also provide recommendations to the Legislature and Governor on addressing rare disease needs. The Council will include representatives from academic research institutions, the Oklahoma Health Care Authority, hospitals, patients, caregivers, rare disease patient organizations, and other stakeholders.