Reorganizes the Advisory Council on Rare Diseases and appropriates funds for its operations.
The bill revises the composition and duties of the Advisory Council on Rare Diseases, transferring it to the Department of Health and Human Services. It establishes a 19-member council with diverse expertise, including physicians, researchers, caregivers, and industry representatives. The council advises on coordinating efforts, increasing public awareness, identifying policy issues, and appropriating funds for rare disease initiatives. The bill also appropriates $250,000 annually for the council's operating expenses.
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- Overview
- Core Provisions
- Implementation
- Impact
- Legal Framework
- Critical Issues
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