Reorganizes the Advisory Council on Rare Diseases, transferring it to the Department of Health and Human Services and appropriating funds for its.
The bill revises the composition and duties of the Advisory Council on Rare Diseases in North Carolina. It establishes the council within the Department of Health and Human Services, with members appointed by the Governor, the President Pro Tempore of the Senate, the Speaker of the House of Representatives, and the Secretary. The council will advise on coordinating efforts for the study, diagnosis, treatment, and public awareness of rare diseases. It will also develop resources and recommendations for treatment and services for rare disease patients.
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- Overview
- Core Provisions
- Implementation
- Impact
- Legal Framework
- Critical Issues
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