New Jersey SJR88 designates the last day of February as "Rare Disease Awareness Day" to promote awareness and research.
New Jersey SJR88 establishes the last day of February each year as "Rare Disease Awareness Day" to raise public awareness of rare diseases, support patients and families, and encourage research. The resolution highlights the challenges faced by those with rare diseases, including isolation, diagnosis, and treatment access. It also notes that while some rare diseases are well-known, many are unfamiliar to the public, and patients and their families often bear the burden of raising awareness and funds for research. The Governor is requested to issue an annual proclamation for the observance.
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