Establishes a central registry for newborn patients diagnosed with sickle cell trait and provides for informational outreach and genetic counseling.
The bill requires the Commissioner of Health to establish a central registry of newborn patients diagnosed with sickle cell trait. It mandates that the Department of Health notify parents of patients in the registry about the availability of genetic counseling and educational services. The registry information is confidential and unauthorized disclosure is a punishable offense. The bill also requires the commissioner to notify parents of patients in the registry that follow-up consultations with a physician may be beneficial for children diagnosed with sickle cell trait.
Included in complete analysis
- Overview
- Core Provisions
- Implementation
- Impact
- Legal Framework
- Critical Issues
See what it does, who it affects, and the critical issues in plain language. Free, 30 seconds.