S.2516

Establishes central registry for sickle cell trait diagnoses; provides for informational outreach and genetic counseling.

Introduced·2/5/24
Introduced Text

Establishes a central registry for newborn patients diagnosed with sickle cell trait and provides for informational outreach and genetic counseling.

The bill requires the Commissioner of Health to establish a central registry of newborn patients diagnosed with sickle cell trait. It mandates that the Department of Health notify parents of patients in the registry about the availability of genetic counseling and educational services. The registry information is confidential and unauthorized disclosure is a punishable offense. The bill also requires the commissioner to notify parents of patients in the registry that follow-up consultations with a physician may be beneficial for children diagnosed with sickle cell trait.

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  • Overview
  • Core Provisions
  • Implementation
  • Impact
  • Legal Framework
  • Critical Issues

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Where it stands

Current
Health, Human Services and Senior Citizens Committee
Next
Session adjourned — paused until it reconvenes

Sponsors

D
1
0
Democratic CaucusRepublican Caucus

History

Feb 5, 2024

Senate

Introduced in the Senate, Referred to Senate Health, Human Services and Senior Citizens Committee