Designates May 7 as Cystinosis Awareness Day in New Jersey to promote awareness and support for individuals with cystinosis.
This bill designates May 7 of each year as "Cystinosis Awareness Day" in New Jersey. Cystinosis is a rare genetic disorder causing cystine crystals to accumulate in cells, leading to severe organ damage. Early detection and treatment are crucial for improving outcomes. The day aims to raise awareness, support research, and advance advocacy and fundraising efforts. The Governor is requested to issue an annual proclamation to encourage participation in awareness activities.
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