New Jersey AJR119 designates November 7 as Shwachman Diamond Syndrome Awareness Day.
New Jersey AJR119 designates November 7 of each year as "Shwachman Diamond Syndrome Awareness Day" to increase awareness of this rare genetic disorder. Shwachman Diamond Syndrome (SDS) primarily affects bone marrow, pancreas, and skeleton, leading to bone marrow dysfunction, pancreatic insufficiency, and skeletal abnormalities. The resolution aims to promote research and understanding of SDS, which affects an estimated 2,000 Americans, with symptoms typically appearing by 4 to 6 months of age.
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