New Jersey AJR114 designates the last day of February each year as "Rare Disease Awareness Day" to raise awareness and support for rare diseases.
New Jersey AJR114 establishes the last day of February each year as "Rare Disease Awareness Day" in New Jersey. This day aims to raise public awareness of rare diseases, encourage support for patients and families affected by these conditions, and promote further research into rare diseases and their treatment. The resolution highlights the challenges faced by those with rare diseases, including isolation, obtaining accurate diagnoses, and accessing treatment. It also notes that while some rare diseases are well-known, many others remain unfamiliar to the public.
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