A5501

Establishes "Tom's Friends with ALS Bill of Rights" Act for ALS patients.

This bill establishes the "Tom's Friends with ALS Bill of Rights" Act, ensuring rights for individuals with ALS or other motor neuron diseases. It mandates equitable health and hygiene care services in the home, including access to personal care services like nail care and hair care. Patients receiving palliative, comfort, or hospice care are guaranteed continued use of speech therapy services and durable medical equipment. The bill eliminates prior authorization requirements for liquid medications and durable medical equipment.