Establishes central registry for sickle cell trait diagnoses; provides for informational outreach and genetic counseling.
The bill establishes a central registry for newborn patients diagnosed with sickle cell trait in New Jersey. It requires the Commissioner of Health to compile statistical information and provide follow-up counseling, intervention, and educational services to patients and their parents. The registry information is confidential, and unauthorized disclosure is a punishable offense. The bill also mandates that parents of diagnosed children receive information about genetic counseling and the risks associated with sickle cell trait.
Included in complete analysis
- Overview
- Core Provisions
- Implementation
- Impact
- Legal Framework
- Critical Issues
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