HB943

Establishes the Montana rare disease advisory council to advise on rare disease needs.

Montana HB943 establishes a rare disease advisory council within the Department of Public Health and Human Services. The council consists of 17 members representing diverse backgrounds, including researchers, healthcare providers, and patient advocates. The council's duties include convening public hearings, soliciting public comment, and developing policy recommendations to improve access to care and research for rare disease patients. The council will meet quarterly, submit annual reports to the governor and legislature, and may seek additional funding sources.