Establishes a governance board at the University of Missouri to report on research related to rare pediatric diseases.
The bill establishes a governance board at the University of Missouri to oversee and report on research related to rare pediatric diseases. The board will include representatives from the school of medicine, the University of Missouri research reactor, Ellis Fischel Cancer Center, NextGen Precision Health, and one appointee from each chamber of the Missouri general assembly. It will also include a patient or family advocate representative and a member from a collaborating nonprofit or industry partner.
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