Missouri HB2513 establishes requirements for individualized care plans for children with rare or medically complex conditions.
Missouri HB2513, known as "Maddie's Law: The Rare Pediatric Disease Care and Protocol Protection Act," mandates that health care providers collaborate with caregivers to develop, document, and maintain individualized care plans for children with rare or medically complex conditions. These plans must include clear emergency care instructions and identify the child's primary specialist. Health care providers are prohibited from retaliating against caregivers for advocating for the care plan or reporting protocol deviations.
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