Minnesota SF1069 modifies the Rare Disease Advisory Council's membership and duties.

Minnesota SF1069 amends the membership and duties of the Rare Disease Advisory Council. The council's public membership now includes physicians, nurses, hospital administrators, and others with experience in rare diseases. Legislative members include two senators and two representatives appointed by party leaders. The council's duties include advising on policy issues, advancing initiatives, and issuing grants. The bill also appropriates funds for the council to study reimbursement models for gene therapies. Members serve without compensation but may have expenses reimbursed.

Minnesota SF1069 modifies the Rare Disease Advisory Council's membership and duties.

Minnesota SF1069 amends the membership and duties of the Rare Disease Advisory Council. The council's public membership now includes physicians, nurses, hospital administrators, and others with experience in rare diseases. Legislative members include two senators and two representatives appointed by party leaders. The council's duties include advising on policy issues, advancing initiatives, and issuing grants. The bill also appropriates funds for the council to study reimbursement models for gene therapies. Members serve without compensation but may have expenses reimbursed.