HB4169

Health: diseases; rare disease advisory council; create. Amends 1978 PA 368 (MCL 333.1101 - 333.25211) by adding secs. 5135 & 5135a.

Introduced·3/5/25
Introduced Text

Establishes a rare disease advisory council within the Michigan Department of Health and Human Services.

The bill creates a rare disease advisory council within the Michigan Department of Health and Human Services. The council will advise on research, diagnosis, and treatment efforts related to rare diseases. It will consist of the director and up to 18 additional members appointed by the director, including healthcare professionals, researchers, and representatives from patient organizations and the biopharmaceutical industry. The council will research rare diseases, coordinate with other organizations, and develop policy recommendations.

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Where it stands

Current
Health Policy Committee
Next
Committee decision

Sponsors

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36
1
R
Democratic CaucusRepublican Caucus

History

Mar 6, 2025

House

Bill Electronically Reproduced 03/05/2025

Mar 5, 2025

House

Introduced By Representative Rep. Jason Morgan

Mar 5, 2025

House

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