Designates April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day in Massachusetts.
The bill proposes to amend the General Laws of Massachusetts by adding a new section that mandates the governor to issue an annual proclamation for April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day. This rare genetic disorder, caused by mutations in the CSNK2A1 gene, is characterized by developmental delays and brain function differences, which can be managed with early therapy. The day aims to raise public awareness about this condition.
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