Massachusetts H1347 aims to improve sickle cell care through data collection, education, and coordinated services.

Massachusetts H1347 establishes a Statewide Steering Committee on Sickle Cell Disease to oversee efforts to improve care and outcomes for individuals with sickle cell disease. The bill mandates the creation of a central registry for patients diagnosed with sickle cell trait and requires laboratories to notify physicians and document patient information. It also establishes a sickle cell disease detection and education program to promote screening and education, and provides grants for post-diagnosis counseling and outreach.

Massachusetts H1347 aims to improve sickle cell care through data collection, education, and coordinated services.

Massachusetts H1347 establishes a Statewide Steering Committee on Sickle Cell Disease to oversee efforts to improve care and outcomes for individuals with sickle cell disease. The bill mandates the creation of a central registry for patients diagnosed with sickle cell trait and requires laboratories to notify physicians and document patient information. It also establishes a sickle cell disease detection and education program to promote screening and education, and provides grants for post-diagnosis counseling and outreach.