Louisiana HR401 memorializes the U.S. Congress to prioritize research and clinical trials for a cure for Sanfilippo Syndrome.

Louisiana HR401 memorializes the U.S. Congress to prioritize research, clinical trials, and treatment development for Sanfilippo Syndrome, a rare genetic disorder affecting one in seventy thousand births. The resolution highlights the need for increased funding and support for ongoing scientific research and clinical trials. It also expresses support for families, like the Guillorys, who face the daily challenges of the disease and advocates for policies advancing medical research and public welfare.

Louisiana HR401 memorializes the U.S. Congress to prioritize research and clinical trials for a cure for Sanfilippo Syndrome.

Louisiana HR401 memorializes the U.S. Congress to prioritize research, clinical trials, and treatment development for Sanfilippo Syndrome, a rare genetic disorder affecting one in seventy thousand births. The resolution highlights the need for increased funding and support for ongoing scientific research and clinical trials. It also expresses support for families, like the Guillorys, who face the daily challenges of the disease and advocates for policies advancing medical research and public welfare.