Establishes the Neurodegenerative Disease Patient Protection and Progress Act.
The Neurodegenerative Disease Patient Protection and Progress Act establishes a voluntary statewide clinical and population registry to collect de-identified information and, with the patient's informed consent, limited identifying information, to improve understanding of burden imposed by neurodegenerative diseases, natural history, and outcomes, facilitate public health planning and service delivery, and support research. Requires the Department of Public Health to convene a Neurodegenerative Disease Advisory Council within the Department.
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- Core Provisions
- Implementation
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- Legal Framework
- Critical Issues
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