Illinois HR0922 declares June 20, 2026, as FSHD Awareness Day to highlight the challenges of Facioscapulohumeral muscular dystrophy.
Illinois HR0922 establishes June 20, 2026, as FSHD Awareness Day to raise awareness about Facioscapulohumeral muscular dystrophy, a genetic neuromuscular disease affecting skeletal muscles. The resolution highlights the challenges individuals with FSHD face, including chronic pain, fatigue, and loss of upper body mobility. It emphasizes the need for continued research and development of new treatments for this condition, which affects an estimated 40,000 Americans.
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