Illinois HR0922 declares June 20, 2026 as FSHD Awareness Day in Illinois.
Illinois HR0922 declares June 20, 2026 as FSHD Awareness Day in the State of Illinois. FSHD, or Facioscapulohumeral muscular dystrophy, is a genetic neuromuscular disease that weakens skeletal muscles in the face, shoulder girdle, and upper arms. The resolution highlights the challenges individuals with FSHD face, including delayed diagnosis, respiratory insufficiency, chronic pain, and loss of upper body mobility. It emphasizes the need for continued research and development of new treatments.
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