Illinois HR0922 declares June 20, 2026 as FSHD Awareness Day to highlight Facioscapulohumeral muscular dystrophy.
Illinois HR0922, passed in the 104th General Assembly, declares June 20, 2026 as FSHD Awareness Day in Illinois. This resolution recognizes Facioscapulohumeral muscular dystrophy, a genetic neuromuscular disease affecting skeletal muscles in the face, shoulder girdle, and upper arms. The bill highlights the challenges individuals with FSHD face, including delayed diagnosis, chronic pain, and potential dependency on mobility aids. It emphasizes the need for continued research and treatment development for this condition, which impacts an estimated 40,000 Americans.
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