Illinois HR0382 declares June 9, 2025, as Batten Disease Awareness Day to recognize the disease and efforts to find treatments.
Illinois HR0382 declares June 9, 2025, as Batten Disease Awareness Day to recognize the rare disease population, including those with Batten disease. The resolution highlights the importance of early diagnosis and the efforts of Dr. Elizabeth Berry-Kravis and her team at Rush University Medical Center in advancing genetic treatments. It also commends Charlie Sims and Team Charlie for their work in raising awareness and supporting research for Batten disease.
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