Declares March 5, 2025 as Rare Disease Day in Illinois to raise awareness and support for rare disease research and treatment.
The resolution highlights the significance of rare diseases, which affect nearly 30 million Americans, including many children. It emphasizes the need for increased research and funding to support the discovery and development of therapies. The resolution also recognizes the efforts of the Illinois Rare Disease Commission and the Orphan Drug Act. It aims to bring attention to the challenges faced by individuals and families affected by rare diseases, including diagnosis delays and lack of access to treatments.
Included in complete analysis
- Overview
- Core Provisions
- Implementation
- Impact
- Legal Framework
- Critical Issues
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