Establishes a rare disease advisory council within the Department of Health to advise on rare disease needs.

The bill establishes a rare disease advisory council within the Department of Health to advise the State on the needs of rare disease patients. The council will consist of fourteen members, including representatives from academic research institutions, health care providers, the biotech industry, and state government. The council's duties include developing a landscape of rare disease needs, identifying research priorities, and recommending policies to improve access to treatments and services. The council will submit annual reports to the governor and legislature.

Establishes a rare disease advisory council within the Department of Health to advise on rare disease needs.

The bill establishes a rare disease advisory council within the Department of Health to advise the State on the needs of rare disease patients. The council will consist of fourteen members, including representatives from academic research institutions, health care providers, the biotech industry, and state government. The council's duties include developing a landscape of rare disease needs, identifying research priorities, and recommending policies to improve access to treatments and services. The council will submit annual reports to the governor and legislature.