HB910

Establishes a Rare Disease Advisory Council to address rare disease needs in Hawaii, including policy recommendations and educational resources.

The bill establishes a Rare Disease Advisory Council within the Hawaii Department of Health to address the needs of individuals with rare diseases. The council will convene public hearings, consult with experts, and develop policy recommendations to improve patient access to specialists, health care coverage, diagnostics, and treatment. It will also identify best practices to reduce health disparities and achieve health equity in rare disease research, diagnosis, and treatment.