Establishes a rare disease advisory council to advise on needs of rare disease patients.

The bill establishes a rare disease advisory council within the Department of Health to advise the governor, legislature, and other government agencies on the needs of rare disease patients. The council will develop a survey of needs, policy recommendations, and best practices for research, diagnosis, and treatment of rare diseases. It will also identify areas of unmet research needs, establish training resources, and distribute educational materials for health care providers.

Establishes a rare disease advisory council to advise on needs of rare disease patients.

The bill establishes a rare disease advisory council within the Department of Health to advise the governor, legislature, and other government agencies on the needs of rare disease patients. The council will develop a survey of needs, policy recommendations, and best practices for research, diagnosis, and treatment of rare diseases. It will also identify areas of unmet research needs, establish training resources, and distribute educational materials for health care providers.