Florida H1381, the Promising Pathways Act, aims to facilitate access to experimental treatments for terminal conditions and life-threatening rare.

The bill, titled the Promising Pathways Act, seeks to create a transparent and safe pathway for patients with terminal conditions and life-threatening rare diseases to access experimental treatments. It mandates the Department of Health to establish and maintain a patient registry for collecting and analyzing outcomes of experimental treatments. Eligible facilities must submit anonymized health information to this registry. The bill also requires the department to adopt rules for licensing experimental treatment centers and to approve or deny applications within 90 days.

Florida H1381, the Promising Pathways Act, aims to facilitate access to experimental treatments for terminal conditions and life-threatening rare.

The bill, titled the Promising Pathways Act, seeks to create a transparent and safe pathway for patients with terminal conditions and life-threatening rare diseases to access experimental treatments. It mandates the Department of Health to establish and maintain a patient registry for collecting and analyzing outcomes of experimental treatments. Eligible facilities must submit anonymized health information to this registry. The bill also requires the department to adopt rules for licensing experimental treatment centers and to approve or deny applications within 90 days.