Resolution designating February 27, 2025, as Rare Disease Day to raise awareness and support research.
The resolution designates February 27, 2025, as Rare Disease Day, recognizing the importance of improving awareness, encouraging accurate and early diagnosis, and supporting research efforts for rare diseases. It highlights the challenges faced by individuals with rare diseases, including difficulty in obtaining accurate diagnoses and finding specialized treatment centers. The resolution also notes that more than 30 million people in the U.S. are living with one of over 10,000 known rare diseases, with children comprising a significant portion of this population.
Included in complete analysis
- Overview
- Core Provisions
- Implementation
- Impact
- Legal Framework
- Critical Issues
See what it does, who it affects, and the critical issues in plain language. Free, 30 seconds.